I just watched this that I found from another blog that I read. It saddens me so much that children have to go through such radical surgery to get rid of their seizures. There are a few friends that I have met via blogs that have had this done. What a scary thing to have to watch your child go through. I am so thankful that medication worked for Nora. But I don't know how much damage her seizures did to her brain before she was finally diagnosed with Infantile Spasms. She went at least 4 months undiagnosed and untreated. That is a long time to mess with a developing brain.
I know she has come so far since then but she still has such a long way to go to catch up. If she can.
She is doing great so I should be so thankful and grateful for what we have and how far she has progressed but some days, it is hard not to think into the future.
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
