Nora's Blog: October 2010

Saturday, October 23, 2010

Random pictures

Emma's second grade school photo-cute but a goofy side smile

Polaroid app on my phone

My new cowboy boots from TX!

Pumpkin princess

Batgirl!

Dancing in the sun

eating lollipops

We were hoping to go to a pumpkin patch today but we woke up to rain. May just have to go buy one at the store and do some carving today. Emma is getting very excited for Halloween. All else is well in our house.

Thanks for checking in
Lori

Friday, October 15, 2010

Madsen bikes

I think I need one of these!

How awesome would it be to be able to ride a bike w/Nora in the bucket? She probably would jump out every 5 minutes but it would look cool! Ollie might like it too. He's getting old.

I'm off to Austin for the weekend!

See you later

Lori

Nora's history

Nora Frances was born February 7, 2006. She was a healthy girl, 8 lbs. 8 oz. Before she was born, we found out that she had an arachnoid cyst in her brain. Of course I was petrified but the doctors assured me that most people with these cysts never even know they have them. In future ultrasounds we found out that she had 3 of these cysts. When she was 5 weeks old, we had her 1st MRI done. Everything looked ok and we were told not to worry about the cysts unless there were problems. Nora developed on time up until around 9 months. She developed a "head tic" which I reported to her pediatrician. She said to "keep an eye on it". She also wasn't making good eye contact and she wasn't really responding to her name. By January, she wasn't crawling and we were starting to worry. We went to doctor after doctor after doctor. We finally went back for another MRI in March which showed some other brain abnormalities including agenisis of her corpus callosum and heterotopia. Then we finally saw a neurologist in March who scheduled an EEG in April. As soon as they saw her EEG we were sent to the hospital to start the anti-seizure drug ACTH. It has to be injected every day so we were trained on how to give the injections at home. Nora stopped having the seizures after one week on the meds.

Apparently the head tics we saw were seizures related to Infantile Spasms. The EEG showed hypsarrhythmias in her brain waves. If not treated IS can cause severe brain damage. Nora wasn't diagnosed until she was 14 months old. Even so, Nora showed development even on the anti seizure drugs (which usually slow down development). She started walking (well, taking steps) in May,2007. Since then, she's continued to develop and show us what an amazing little girl she is.

Saturday, October 23, 2010

Random pictures

Friday, October 15, 2010

Madsen bikes

counter

Blog Archive