Nora's Blog: Random pictures

Saturday, October 23, 2010

Random pictures

Emma's second grade school photo-cute but a goofy side smile

Polaroid app on my phone

My new cowboy boots from TX!

Pumpkin princess

Batgirl!

Dancing in the sun

eating lollipops

We were hoping to go to a pumpkin patch today but we woke up to rain. May just have to go buy one at the store and do some carving today. Emma is getting very excited for Halloween. All else is well in our house.

Thanks for checking in
Lori

3 comments:

Sophie's Story by Elaine said...: We FINALLY made it to the pumpkin patch this morning. There was a chance of rain but it ended up being a gorgeous morning. We even got to visit with Meghan and Jackson (do you read her blog?).

Love the polariod pic of Nora. Love all the pics actually. Emma posing perfectly as batgirl and that pic of Nora dancing in the sun is just priceless.; October 23, 2010 at 12:56 PM
Sophie's Story by Elaine said...: Is the polaroid app you used called InstantCam?; October 23, 2010 at 12:58 PM
Lori said...: I have Hipstamatic and shakeitphoto not sure which one I used; October 23, 2010 at 2:31 PM

Nora's history

Nora Frances was born February 7, 2006. She was a healthy girl, 8 lbs. 8 oz. Before she was born, we found out that she had an arachnoid cyst in her brain. Of course I was petrified but the doctors assured me that most people with these cysts never even know they have them. In future ultrasounds we found out that she had 3 of these cysts. When she was 5 weeks old, we had her 1st MRI done. Everything looked ok and we were told not to worry about the cysts unless there were problems. Nora developed on time up until around 9 months. She developed a "head tic" which I reported to her pediatrician. She said to "keep an eye on it". She also wasn't making good eye contact and she wasn't really responding to her name. By January, she wasn't crawling and we were starting to worry. We went to doctor after doctor after doctor. We finally went back for another MRI in March which showed some other brain abnormalities including agenisis of her corpus callosum and heterotopia. Then we finally saw a neurologist in March who scheduled an EEG in April. As soon as they saw her EEG we were sent to the hospital to start the anti-seizure drug ACTH. It has to be injected every day so we were trained on how to give the injections at home. Nora stopped having the seizures after one week on the meds.

Apparently the head tics we saw were seizures related to Infantile Spasms. The EEG showed hypsarrhythmias in her brain waves. If not treated IS can cause severe brain damage. Nora wasn't diagnosed until she was 14 months old. Even so, Nora showed development even on the anti seizure drugs (which usually slow down development). She started walking (well, taking steps) in May,2007. Since then, she's continued to develop and show us what an amazing little girl she is.

Saturday, October 23, 2010

Random pictures

3 comments:

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