Wednesday, April 6, 2011


First time on her bike with training wheels

After (sneaky little girl) eating a bunch of chocolate caramels that I made and left on the counter

I changed the blog background. All the blogs that I read have custom fancy stuff. I have NO idea how to do that. You most likely have to pay for it. I do like orange. I don't really even post so much anymore. I am past the point of really stressing out and obsessing over everything Nora.

She is doing great. Don't get me wrong- She has some major delays -socially, cognitively, communicative and has some behavior issues (she runs away from me or whoever anytime its time to transition-to the car, take a bath, get on the bus, at school, in the store, where ever) it's exhausting trying to reason with her and then I end up just dragging her to where she needs to be. She is heavy. Very heavy. And she won't poop in the damn potty.

She's going into a self contained kindergarten next year-not a typical general ed class which bums me out but hopefully someday she'll get there.

She is such a happy and fun and loving little girl. She always puts a smile on my face. I love her to pieces. I was remembering when I found out she had arachnoid cysts- they sound so awful-I assumed I would have to decide whether to terminate the pregnancy or not. Obviously that wasn't the case-arachnoid cysts aren't that big of a deal, or so they said. But I remember thinking for a split second I didn't want a child with a disability or have a special needs child. I couldn't imagine having to deal with it. I only wanted perfect. Turns out, that is what I got. She is perfect for us.

People used to tell me "thank god Nora got you as a mom, otherwise who knows what could have happened to her" I would get so mad and think that just because I am dealing with it all, do I deserve to have a non perfect child? Why me and not someone else? and I would think, what else is there to do? let her sit in a corner and not do everything I can to help her thrive and grow?

Turns out, we both lucked out. She got us and we got her. She is perfect just the way she is. Except the poop part. That I could live without. I am ready to be diaperless. Really, I am. 7 1/2 years straight. Enough already.

I'll be 40 in 4 days. Yikes.

Emma's new favorite song- Just the way you are

Thanks for checking in


1 comment:

Sophie's Story by Elaine said...

If Sophie and Nora lived closer together, they would be the best of friends. She is absolutely perfect AND adorable. Sophie is transitioning to kindergarten this fall also. But our IEP is not until May. I'm pushing for the general ed class (of course) but we will see. I hope that Nora, at least, gets to join the general ed class for specials (PE, art, music, etc). That is where I think Sophie will most likely end up. A split between the general ed and self-contained classroom. She will go full day. So, in addition to the specials, hopefully she will join the class for lunch and recess. We will soon find out. Anyway, I wish I could reach across the internet and give you a great big hug. I know we BOTH have said this time and time again...Nora and Sophie are sooooo much alike. So I know how ya feel!!!