We have not had any new news lately. Emma's birthday party was Thursday which was fun. It was princess-ariffic. We leave on Tuesday (her real birthday) to fly to Albany NY (we being me and the girls). Alex is going to Mexico for work so I will be flying solo.
Nora had a bit of a temp tonight-101.5 so hopefully it will pass by the time we leave. She is doing well on her new medication. We haven't really seen too much of a change yet. She's still on the old one for now. She seems to be handling it ok. She's showing a lot more emotions and smiling all the time. She is progressing in so many areas all at once it's hard to mention them all. Her walking is better and she is getting fast. She went right out the door and fell down the porch steps the other day before I even knew what happened. She was fine thank goodness. We have about 5 safety gates now.
We'll be in NY for a week so I will give an update after we get back . We have so many people to see and places to go, I don't think I'll have time to update the blog. Or maybe I will since I won't have to take care of my kids at all. Mim and Grandfather will be on call.
Hope all is well.
Thanks for checking in. Please leave a comment so I know you were here!
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
3 comments:
So glad you and the girls are coming to see mom and dad. I read about Nora all the time and so glad
she is doing well. Tell mom or dad to stop by for some fresh tomatoes while you are here.
Love, Jane Godfrey
Hi Lor - Stopped by to see how Nora was doing. I am glad to hear she is doing well and having lots of fun walking. I am sure you love seeing her smile. I have visited a few times but haven't left a comment.
Glad you are back east for a visit. I hope you are having fun! I am sure your parents are. We just returned from out trip back east last week. We had such a great visit.
I'll check back soon. Thinking of you and the girls...
Love,
Carolann
It was nice seeing you at the b-day party. Nora is looking good, I'm glad to see her toddling like a good ol' toddler.
Post a Comment