I have no pictures to post because I am still in NY. And our home computer (brand new computer) is having issues. They wiped the hard drive so we have to re download all of our files. Fun stuff.
Anyway, we are here in upstate visiting my family. And I went to my 20 yr high school reunion. Very back to the future for me but fun. Got to see some old friends. Like my very best friend from grade school-Lori H. And my best bud Z. Got to meet his wee one and wife. Hope to see some more long lost friends before I go.
The girls are loving it. Cousins, grandparents, friends. Fun in the humidity. Ug. so hot. I am not used to it.
I will update more when we get back to Seattle. I am flying back with the girls on Sun. Alex already went back.
Happy summer
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
Wednesday, July 29, 2009
Thursday, July 2, 2009
summer fun
I can't believe it's July already. Emma had her dance recital and did a great job. It was really a great performance. All the dancers work so hard all year and it is amazing. Some of the seniors had been dancing since they were 3. Emma is taking a circus camp this week. They do tight rope, acrobatics, trampoline, ropes, tumbling, juggling, etc. No clown stuff though. She seems to be enjoying it.
Nora has been trucking along. She is showing no signs of side effects from weaning her off Lamictal. She is down to 30 mg/day from 70/day. Still talking all day- every second of the day. She wakes up and yells from her room "Mooooommmmmmmmyyyyy, where are you?" "Watch Sesame Street?" She went from giving a hoot about TV to an Elmo junkie.
Nora and Emma go to the summer camp at the EEU (Nora's awesome school) next week. They should have fun. Then we head to the OR coast for some family fun. Then home for 2 days and off to NY for my reunion and some family time. The girls and I will be there for 2 1/2 weeks. Then back in Aug. and Emma's 6th bday. Wow. Time flies.
Thanks for checking in. I'll try to get more exciting pictures soon.
Lori
Subscribe to:
Posts (Atom)