Nora's Blog: Spring Break

Sunday, April 11, 2010

Spring Break

It's been a busy few weeks. We went to upstate NY for Easter and Spring Break. I took the girls solo. Emma and Nora loved seeing the Pawlows Family. They played with their cousins Katie and Brynna as much as we could. Mim and Grandfather were tuckered out by the time we left. The travel wasn't as hard as some would think. The girls are really good on the plane. It's the layovers that get me. Nora is a runner and I have to be on her every second. As long as we had the iTouch and Yo Gabba Gabba episodes, we were fine.

When we got back we had a birthday dinner with the Draper grandparents for my birthday. Grandma found Brobee, Plex and Foofa online and Nora was so happy! She goes back to school on Mon after 2 weeks off. She is really talking so much. It's really unbelievable sometimes. She likes to ask people what their names are, what their favorite color is, and she asks everyone to tell her a story. Funny girl.

Thanks for checking in!

Happy Spring

Lori

4 comments:

Sophie's Story by Elaine said...: Wow...you are a brave mother to take your kids on a flight from coast to coast...no matter how great they may be.

By the way, how did the french toast waffles turn out?; April 11, 2010 at 10:05 PM
Lori said...: you need to make them. They were really good. I love french toast and these were super easy and good. I would use challah bread next time.

Flying wasn't so bad, really. I don't think I could do it with 3...

If you ever feel like coming to Seattle let me know:); April 11, 2010 at 10:26 PM
Danielle said...: Wow...two weeks of Spring Break?! Yikes a roni! :)

Glad you survived!

...danielle; April 13, 2010 at 12:36 PM
Hua said...: Hey,

Nora sounds like a pleasure to be around. She has such an outgoing inquisitive nature.

I found your blog while searching for unique and helpful content on children's health. I think you could benefit from sharing your personal story to those seeking connection to other people who are in similar situations regarding children's health. Wellsphere's HealthBlogger Network (HBN) is comprised of over 3,000 of bloggers who motivate and support each other through 150 communities.

For more information about joining, please visit http://www.wellsphere.com/health-blogger or email me at hua [at] wellsphere [dot] com.

Best,
Hua
Director of Blogger Networks; April 20, 2010 at 10:49 PM

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Nora's history

Nora Frances was born February 7, 2006. She was a healthy girl, 8 lbs. 8 oz. Before she was born, we found out that she had an arachnoid cyst in her brain. Of course I was petrified but the doctors assured me that most people with these cysts never even know they have them. In future ultrasounds we found out that she had 3 of these cysts. When she was 5 weeks old, we had her 1st MRI done. Everything looked ok and we were told not to worry about the cysts unless there were problems. Nora developed on time up until around 9 months. She developed a "head tic" which I reported to her pediatrician. She said to "keep an eye on it". She also wasn't making good eye contact and she wasn't really responding to her name. By January, she wasn't crawling and we were starting to worry. We went to doctor after doctor after doctor. We finally went back for another MRI in March which showed some other brain abnormalities including agenisis of her corpus callosum and heterotopia. Then we finally saw a neurologist in March who scheduled an EEG in April. As soon as they saw her EEG we were sent to the hospital to start the anti-seizure drug ACTH. It has to be injected every day so we were trained on how to give the injections at home. Nora stopped having the seizures after one week on the meds.

Apparently the head tics we saw were seizures related to Infantile Spasms. The EEG showed hypsarrhythmias in her brain waves. If not treated IS can cause severe brain damage. Nora wasn't diagnosed until she was 14 months old. Even so, Nora showed development even on the anti seizure drugs (which usually slow down development). She started walking (well, taking steps) in May,2007. Since then, she's continued to develop and show us what an amazing little girl she is.

Sunday, April 11, 2010

Spring Break

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