So Nora missed her EEG yesterday. She threw up again yesterday a.m. and is not eating much. I don't know if this is a stomach bug or due to the withdrawal from the steroid. I know her appetite goes down after the steroids are done but she is really gagging on everything.
Good thing cousin Brynna and Mim are here to help. They took Emma shopping yesterday while Nora and I went to the doctors to see what was up. Hopefully this will go away soon and Nora will feel better.
At least she is sleeping better. We had an actual full night of sleep last night. She slept a whole 9 hours straight. And she's napping like a champ. So hopefully we'll see some improvement this weekend. We rescheduled the EEG for Mon. so I'll let you all know how that goes.
Thanks for checking in.
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
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