Nora's Blog: Thankful

Thursday, November 22, 2007

Thankful

I am thankful for two beautiful children. I am thankful for my wonderful family. I am thankful for my family's health. I am thankful for Nora's gagas and buhbuhs. I am thankful for Nora's big smile everyday. I am thankful that she can walk and feed herself. I am thankful that Emma loves her sister unconditionally. I am thankful that I have a loving husband who is also a loving father. I am thankful for the clapping Nora has learned. I am thankful for that Emma knows how to count to 30 and loves to dance. I am thankful that Ollie lets the girls crawl all over him. I am thankful for all the support from my family and friends. I am thankful that I can stay home with my children. I am thankful that Nora and Emma are happy little people. I am thankful that I can sleep until 6:30 am (somedays). I am thankful that even though I am not always thankful that we have to live with Nora's disabilities, that I can still be thankful for all we do have.

Happy Thanksgiving
Lori

1 comment:

Unknown said...: Lori - I am thankful you are my friend and that you are sharing this experience with everyone...; December 5, 2007 at 8:24 AM

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Nora's history

Nora Frances was born February 7, 2006. She was a healthy girl, 8 lbs. 8 oz. Before she was born, we found out that she had an arachnoid cyst in her brain. Of course I was petrified but the doctors assured me that most people with these cysts never even know they have them. In future ultrasounds we found out that she had 3 of these cysts. When she was 5 weeks old, we had her 1st MRI done. Everything looked ok and we were told not to worry about the cysts unless there were problems. Nora developed on time up until around 9 months. She developed a "head tic" which I reported to her pediatrician. She said to "keep an eye on it". She also wasn't making good eye contact and she wasn't really responding to her name. By January, she wasn't crawling and we were starting to worry. We went to doctor after doctor after doctor. We finally went back for another MRI in March which showed some other brain abnormalities including agenisis of her corpus callosum and heterotopia. Then we finally saw a neurologist in March who scheduled an EEG in April. As soon as they saw her EEG we were sent to the hospital to start the anti-seizure drug ACTH. It has to be injected every day so we were trained on how to give the injections at home. Nora stopped having the seizures after one week on the meds.

Apparently the head tics we saw were seizures related to Infantile Spasms. The EEG showed hypsarrhythmias in her brain waves. If not treated IS can cause severe brain damage. Nora wasn't diagnosed until she was 14 months old. Even so, Nora showed development even on the anti seizure drugs (which usually slow down development). She started walking (well, taking steps) in May,2007. Since then, she's continued to develop and show us what an amazing little girl she is.

Thursday, November 22, 2007

Thankful

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