On April 24th it will be one year since Nora was diagnosed with infantile spasms. On April 26th we started ACTH. I was looking at pictures the other day and she was unrecognizable. It is amazing how far she's come in one year. She is such a happy little person and is always smiling. She can walk, run, go up and down stairs, say some sounds, understand many commands, feed herself, roll a ball, play with her sister, laugh, play with toys, giggle, throw temper tantrums :), climb up and go down a slide, get mad, cry when I leave :), and so much more. I never would have known we'd be here one year ago. I was so sure she'd be "retarded" and not be able to do any of these things. But she can. And we are so very very lucky.
Lori
Look down at the pictures and see how Nora looked after the ACTH and see her now.
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
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