This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
Friday, April 11, 2008
Infantile Spasms and TSC: A Devastating Diagnosis
Here is a video that explains what Infantile Spasms is and how it affects our family. Nora does NOT have Tuberous Sclerosis but the results of IS are the same
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