Nora's Blog: Gak!

Monday, September 1, 2008

Gak!

Emma and I made Gak the other day. http://homeschooling.gomilpitas.com/extras/Gak.htm

Nora really liked playing with it. Yes she did try to eat some, but mostly she just liked to feel it. It's cool and squish. It was so nice watching Emma and Nora enjoy the same activity. It really is fun to feel. And easy to make.

Only 1 more day until the big K. Emma is getting excited. And I am ready. Alex has been working in the basement non stop for the past 3 days so I had my fill of girl bonding time. School here we come!! And Nora starts back up the week of the 15th.

Happy Labor Day!

Lori

1 comment:

Sophie's Story by Elaine said...: How fun...I will definitely have to try that out with Sophie.; September 2, 2008 at 8:13 PM

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Nora's history

Nora Frances was born February 7, 2006. She was a healthy girl, 8 lbs. 8 oz. Before she was born, we found out that she had an arachnoid cyst in her brain. Of course I was petrified but the doctors assured me that most people with these cysts never even know they have them. In future ultrasounds we found out that she had 3 of these cysts. When she was 5 weeks old, we had her 1st MRI done. Everything looked ok and we were told not to worry about the cysts unless there were problems. Nora developed on time up until around 9 months. She developed a "head tic" which I reported to her pediatrician. She said to "keep an eye on it". She also wasn't making good eye contact and she wasn't really responding to her name. By January, she wasn't crawling and we were starting to worry. We went to doctor after doctor after doctor. We finally went back for another MRI in March which showed some other brain abnormalities including agenisis of her corpus callosum and heterotopia. Then we finally saw a neurologist in March who scheduled an EEG in April. As soon as they saw her EEG we were sent to the hospital to start the anti-seizure drug ACTH. It has to be injected every day so we were trained on how to give the injections at home. Nora stopped having the seizures after one week on the meds.

Apparently the head tics we saw were seizures related to Infantile Spasms. The EEG showed hypsarrhythmias in her brain waves. If not treated IS can cause severe brain damage. Nora wasn't diagnosed until she was 14 months old. Even so, Nora showed development even on the anti seizure drugs (which usually slow down development). She started walking (well, taking steps) in May,2007. Since then, she's continued to develop and show us what an amazing little girl she is.

Monday, September 1, 2008

Gak!

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