This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
Friday, May 1, 2009
May is here
Only 20 days until we go to Maui. SO excited. A very non exciting week around here. Alex got home Sun. and all is back to normal. Emma has running club today. She's getting ready for the Alki-a-thon in a few weeks. The kids get pledges to run laps to raise money for her school. We'll see how many laps she'll run. She's more of a slow poke than a sprinter. I can't believe she's almost done with Kindergarten.
Nora's school's auction is at the end of the month. It is an enormous event. Last year they raised over $600,000 and has made $750,000 in past years. It won't be as big this year due to downsizing the items and the economy. But it is a fun event and this year's theme is Mission Possible-spy stuff. What to wear?
I am worried about what to do with Nora this summer. Her school has a camp in July but we'll be travelling a lot that month (Seaside, OR and NY for my 20 yr reunion). But then in Aug? nada. She's too young and not potty trained for most camps and I wouldn't trust her to be in a typical camp setting. She's a handful to take to the beach/pool/park. Think 18 month old in a 3 year old's body. I have to be on top of her so she doesn't run away or get hurt. Emma has 1 camp scheduled in Aug. and hopefully some swim lessons. We'll have to get creative.
Thanks for checking in
Lori
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