This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
Sunday, August 9, 2009
All done with meds
Cousin Katie and Emma at the Saratoga children's museum
Emma and Brynna
Emma and Zoe
Nora and Grandfather
Mim and Nora
Today was Nora's last day of her seizure medication. 5 mg. of Lamictal. Now she is med free. Kinda scary. She's been on medication since April 25, 07 when she was put on ACTH and zonegran. And she's been seizure free since May 2, 07.
In the past 2 years she has learned to walk, run, talk, clap, wave, watch Elmo, say mommy, sleep in a bed, not need a car seat on a plane, go down stairs unassisted, feed herself with a fork, pretend, give kisses and hugs, say I love you, know her letters and sounds, read books and just be happy. She is such a happy little girl. She likes to go outside, run and play. Everyday is so much fun for her. We are so thankful.
We have been home from NY for a week. We jumped right back into it. Emma had swim lessons all week, Nora speech, I got ready to host a baby shower yesterday. Alex went back to work. And our computer was fixed finally. Still have some tinkering to do but it's up and running. Phew.
I will post more soon. Emma turns six on Friday! yikes