Nora's Blog: Pumpkin Patch

Friday, October 23, 2009

Pumpkin Patch

Yesterday we went to the pumpkin patch with Mim, Grandfather, Lucas, Daddy, Mommy, Emma and Nora. Everyone had fun tromping through the mud, getting lost in the corn maze, feeding the alpacas and petting chickens. Nora gets a bit wild when there are no set boundaries so she was running wild through the maze and we'd have to bushwack to go get her. And the mud made for some fun slipping. We got some good pumpkins to carve today. It was a fun day.

We have had a busy week with Mim and Grandfather. Pumpkin patch, Pacific Science Center, mass at Holy Rosary, Farmers market, Alki beach, Magnusen Park, haircuts, EEU ice cream social, saw orcas swimming in the sound off Alki, and lots of eating! They go back to NY tomorrow. I am sure they will be glad to get a rest! These girls keep them on their toes! Thanks for coming Mim and Grandfaddy. We love you!!!

Lori

1 comment:

blogzilly said...: Nice pics!; October 23, 2009 at 7:22 PM

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Nora's history

Nora Frances was born February 7, 2006. She was a healthy girl, 8 lbs. 8 oz. Before she was born, we found out that she had an arachnoid cyst in her brain. Of course I was petrified but the doctors assured me that most people with these cysts never even know they have them. In future ultrasounds we found out that she had 3 of these cysts. When she was 5 weeks old, we had her 1st MRI done. Everything looked ok and we were told not to worry about the cysts unless there were problems. Nora developed on time up until around 9 months. She developed a "head tic" which I reported to her pediatrician. She said to "keep an eye on it". She also wasn't making good eye contact and she wasn't really responding to her name. By January, she wasn't crawling and we were starting to worry. We went to doctor after doctor after doctor. We finally went back for another MRI in March which showed some other brain abnormalities including agenisis of her corpus callosum and heterotopia. Then we finally saw a neurologist in March who scheduled an EEG in April. As soon as they saw her EEG we were sent to the hospital to start the anti-seizure drug ACTH. It has to be injected every day so we were trained on how to give the injections at home. Nora stopped having the seizures after one week on the meds.

Apparently the head tics we saw were seizures related to Infantile Spasms. The EEG showed hypsarrhythmias in her brain waves. If not treated IS can cause severe brain damage. Nora wasn't diagnosed until she was 14 months old. Even so, Nora showed development even on the anti seizure drugs (which usually slow down development). She started walking (well, taking steps) in May,2007. Since then, she's continued to develop and show us what an amazing little girl she is.

Friday, October 23, 2009

Pumpkin Patch

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