Nora went to PT today. We ordered her some orthodic shoe inserts. This will help her feet stay in the right position for walking. Now we just have to get her some shoes. All of the just walker shoes Emma wore are way too small for Nora. Emma has teeny feet. In fact she can still fit into some of the sandals that Nora can wear.
Emma has a temp of 101 today so she stayed home from camp. We all feel a bit out of it. Nora woke up at 4:00 am and then fell back asleep around 6:00 and slept til 10:00. Good thing Mim and Brynna are coming to take care of us!!! They'll be here on Sunday.
Nora gets her LAST shot tomorrow(hopefully). Then another EEG on Wed. so we hope it still shows no seizure activity. Think good thoughts for her!
Thanks for visiting the blog- write a comment to say hi. It's nice to know who stopped in to see how Nora is doing.
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
1 comment:
Hi!
This is such a good idea, Lori. I have been thinking about Nora and am so glad to know that you guys are now fully involved in her recovery and out of the what is wrong stage (that is the hardest). I love the photos--she is such a sweetie. And to see her walking with pig tails is awesome! I know this is a lot of work for you and Alex, so way to go. I am in awe of how you guys have handled this. Would love to see you all this summer-maybe at one of the wading pools. I will keep checking back to see how Nora is doing :)
Hugs to all,
Kristen, Kerry, Tobey and Stella
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