It's been a while since I have posted. Nothing too exciting to tell. Mim is here for a visit. A whole weeks worth of mim-fun.
Nora is doing well. She took her last dose of Lamictal today to see if we can get her bm's to be regular and not diarrhea. Hopefully it will do the trick and we'll be back on track.
We have a meeting next week with an ABA (applied behavior analysis) specialist to see if she could work with Nora. I don't know if it will help, but it can't hurt. We'll also meet with her teachers on Thurs. to go over her goals for this year. Since the seizures were stopped, she has advanced quickly in so many areas that she is way past her goals from last year. She still needs the most work in communication skills. Still no pointing, signs, or words.
Some good news re: me- my colon is in good shape. I had a colonoscopy today for preventative measures (Bev was here so I thought it would be a good time). Healthy colons all around. Yahoo.
Hope all is well with everyone else. Thanks for checking in.
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
1 comment:
I am pleased that the development has picked up for Nora since becoming SF. My girl doesn't point properly yet, but she is signing several words Sheena is the same age as Nora, and had IS too.
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