Nora and Emma are doing fine with Dad this weekend. First time Alex has the girls solo. I am in NY for Bev's 60th birthday party. Boy was she surprised at the surprise. Happy Birthday!
Nora has been doing very well at school. She is working hard and learning new skills. Hopefully we'll see some pointing and signs in the near future. Her rash is all gone and we are going to try her on the Lamictal again next week. She will hopefully do fine on it so we can get her off of the Zonegran. The Lamictal is better for her cognitive development. The Zonegran somehow delays that. We'll see what happens. Hopefully she can be off all her meds at some point.
Thanks for checking in.
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
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