Tuesday, July 10, 2007


Eeg resutls are in. It looks good, no more infantile spasms. But because she does have such large cysts in her brain, there are "spikes and discharges" during her sleep pattern. That means she is most likely to have other types of seizures at some point. So she'll need to stay on an anti-seizure med for a while (or forever). They want to introduce a new medication called Lamictal which can have deadly side effects if not given properly. She could get a rash and her skin could fall off and then die. (Stevens-Johnson syndrome) That makes me feel a bit apprehensive. I guess if it is introduced slowly enough, over 6 months, there are no side effects.

So-we'll see about that I guess.

Emma has swim lessons this week and the sun is shining. Thanks for stopping in.


1 comment:

Jane Godfrey said...

I think of you often and keep you in my prayers. I enjoy reading the blog as I don't worry when i haven't talked to Bev then. Hugs and Kisses to Nora and Emma.
Jane Godfrey