This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
Thursday, July 12, 2007
Weekend getaway
We're off to the Oregon coast w/ our friends Lisa, Tian and Lucas. We'll be back on Monday. Have a great weekend.
Hello Lori, I ran into your parents at the Golf Course the other day. We were catching up and they told me about Nora and your site. I did not know what you all were going through. I can only imagine the emotions you must feel at different times. I love the first picture, eeg hair. I Hope that you enjoyed your weekend getaway. We are leaving for Cape Cod Saturday for the week but, I will check your site frequently to see your updates. Know that you now have a few more people sending up some prayers for all of you. Take care and if I can ever do anything, please let me know. Take care, Mary Reihs.
1 comment:
Hello Lori,
I ran into your parents at the Golf Course the other day. We were catching up and they told me about Nora and your site. I did not know what you all were going through. I can only imagine the emotions you must feel at different times.
I love the first picture, eeg hair.
I Hope that you enjoyed your weekend getaway. We are leaving for Cape Cod Saturday for the week but, I will check your site frequently to see your updates. Know that you now have a few more people sending up some prayers for all of you.
Take care and if I can ever do anything, please let me know.
Take care,
Mary Reihs.
Post a Comment