Nora had a fun time at our friends Mark & Lesley's house last night. Emma really liked playing with all the bigger kids too. Fun times had by all. We are going to the Broderson's house tonight to see the fireworks and have a bbq.
Nora has been very interactive (for her) and very happy and smiley. I think the effects of the ACTH are wearing off and her personality is coming back. She's still working hard on her walking and looks like a drunken sailor. But she's very motivated and determined. The speech therapist sees a lot of improvement in her communication. I have a hard time seeing the progress b/c I see her all day everyday.
Have a great day!! go USA
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
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