Nora had school today. We were an hour late getting there. The traffic was so backed up due to the rain and an accident. So she was at school for maybe 40 minutes. Oh well. We also went for a blood pressure check at Children's Hospital. It has finally come down to normal so hopefully she'll be able to be off of that medication. Still no word on when we would start the new seizure medication. We meet w/ the neurologist Aug. 3rd so maybe after that. I am in no hurry to change anything at this point. She's been seizure free for 11 weeks and I would like to keep it that way.
We had a great vacation weekend. The weather was great and the kids had a great time on the beach. Can't wait to go again next year.
Thanks for checking in
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
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