So Nora has been off the steroid ACTH for 1 month now. Still seizure free-84 days so far. She is starting to slim down and look like her old self again. I do get comments on how big she is for her age etc. I think she'd be pretty big no matter what.
She had speech therapy today and her therapist, Grace, commented on how much more alert and happy she is. She also said Nora is sustaining eye contact longer and seems to be initiating interaction more. Hopefully one of these days she'll just blurt out Mommy and Daddy. We'll see. We definitely have a lot to be thankful for. She is walking and happy and no seizures. And awfully cute.
Emma turns 4 pretty soon so she's getting excited. She got a new bed -she was on a little toddler bed, and is excited about that too.
Thanks for checking in
Lori
This is Nora's story... Nora was diagnosed with Infantile Spasms April 24, 2007. Infantile spasms is a rare seizure disorder. Nora was put on an anti seizure medication April 26th called ACTH. Her seizures were gone after 1 week of treatment and haven't been back. Nora also has partial agenesis of the corpus callosum and arachnoid cysts in her brain. For more info, check out the history section below.
1 comment:
nora looks beautiful and look at her walking.....we love you norsie,,,,
mim and grandfather
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